Dave's Journal

Had my 1st infusion of steroids today which went well.  They took blood prior to the infusion to do cell counts.  They originally told me 45 minutes for the drip, but the attending infusionist (Diane) told me that my 1st one would be done over 2.5 hours which it was.

I had a reaction (tight/heavy chest, flushing, sweats) after the high dose of steroids was almost complete.  They shut off the steroid bag & added Tagamet & Benadryl to the saline drip and within a minute I felt fine.  Finished the remainder of the steroids.  Diane asked if I was glad they did it over 2.5 hours instead of the 45 minutes (Yes).

Did not go back to work.  Went home and slept for about 90 minutes.  Had a nice dinner with Nicole.

I confirmed with Dr. O’Connell’s office that they were able to finish the testing with the blood drawn from Monday including the test for Lyme disease.  Results pending. 

Right eyesight is still about the same @ 15% vision / 85% impaired.  They think I should notice something possibly Saturday going in the right direction.  Pain in the eye and head has subsided, even when looking in extreme directions.

2nd & 3rd infusions are Thursday & Friday @ 7:30am.  A graduated decreasing sequence of Prednisone starts Saturday to wean me off the high dose steroids.  Damn, and I was so hoping to turn into Arnold overnight...